Saturday, January 27, 2007

Update from Anne herself

My mother wrote out an update for the blog, which i transcribed.

So this is what it takes to be the center of attention. Well i may be the center but what i see from here is a web of connection and love that is growing and deepening. It is sunday morning following another highly interrupted and sweat-drenched night, (my temps have been running 103-104 at night), possibly due to pneumonia but mostly the AL and the chemo. So they gave me a steroid to bring down my temperature and finally kill the four day headache i have had since the spinal tap. My temperature has been normal since then.
The terrors of chemo:
The first few days weren't so bad, then i started getting more nauseous. I'll share just one scene. Middle of the night, no balance, killer headache, nauseous, i got diarrhea from the chemo, Blaugh. Plus orange pee at the same time while puking, not another gross scene will ever be shared. Backtracking, i had very bad Thrush [in her throat], probably saved me time, since I couldnt swallow much and that's why i originally was admitted to the ER. It took away my voice completely, which is still coming back.
I think the ER doctor was a little shocked that my FP had done no blood work. I'd been to him three times in 11 days, it really didn't look typical. The bloodwork showed a pretty clear picture of acute leukemia, followed by a definite test three days later. To the first test my friends responded "oh no, we're sure it's not", but I think I'd known for weeks that I had something i could not heal. So i felt relief and immediate surrender to both the medical system and to spirit. I wondered why I had got it and it seemed very clear for me, for spiritual transformation which I had been praying for.
My days in the hospital in sebastopol were sweet, i was in a state of golden faith and turning my discomforts over to resolve old past deeds, to help world suffering, to pray for a healthier world. That got much harder on the chemo here, so much warfare, so many drugs, but the structure was in place. The heavy chemo ended yesterday, the lighter one today. So the next two weeks I will still have some symtoms [of the chemo], mostly to epithelial tissue area and digestive tract, I already have a rash and irritated eyes which should be resolved soon. My hair should be gone by the end of the week.
Later this week they give me a hormone to pump up my neutrophils. I supposedly leave here at the end of the month, with no cancer and a pretty functional immune system. The doctor just told me the results of the chromosome test, i am "normal". Lots of people have an acquired bad bit [in their DNA] with the AL on it that gives them information for the prognosis and treatment. The best part is i get to use my own cells for the stem cell marrow transplant.
So at the end of this month i go home for 2-4 weeks. After the next chemo, only four days, they harvest my stem cells. That stay will only be 3.5 weeks. When i come back in another 3-4 weeks, they give me a pretty tough chemo, to kill off the marrow. Then they do they transplant.
I am sure i am meant to live, and i am sure your prayers are needed.
Now the fun news, sunday, jan 20th was Dennis and my 9 month anniversary, he was sleeping here. I woke up in a radiant bliss. I feel clear, I wanted to propose to him. I got to sit with it a couple of hours, til he awoke and I wrote a beautiful proposal while he got washed and dressed. I have had so much resistance and defense to this relationship. I guess it took the reality of life and death in my faith to get over it all. He read it, wept, and accepted. He is simply the loveliest human being.
Thank you all for all of your love and concern, I love hearing from you by whatever form works for you. Phone is not good yet, though. All morning i've been crying about love.

8 comments:

steveb said...

Hair---who needs it?

Steve

Russell said...

Steve, Having not seen you since something like 1988 I can only surmise you’ve become follicly challenged?
r

Ruthann said...

What a thrill to see this long missive from Anne!! Anne, a long letter is headed your way tomorrow. I am going to send to your house!!

All my love,
Ruthann

steveb said...

Yup, follicly challenged summarizes it nicely.

Steve

Linda Votta Sullivan (Anne's cousin) said...

Steve-you are hilarious.
And Russell, I can report that Steve is at least NOT in the comb-over club. He accepts his challenge with grace and taste! :-)

Linda

Amanda said...

Anne,
Amanda Claiborne here. A chewable probiotic will help with the thrush. L-glutamine dissolved in water helps a lot with the endothelial damage caused by the chemo. You should take 1/4 tsp. multiple times per day. Please let me know if you need or want these or any other supplements (Reishi/Shitake, Shark Cartilage, Essiac?) I'll be happy to donate them to the cause. Your entry about Dennis made me cry. Why do we fight love so hard?

Sharesa said...

Dearest Anne,
I am so happy to hear this long report from you. Your courage, strength and faith are a force, alway have been. Between you and your angels healing is inevitable. You never cease to inspire me. Congradulations to you and Dennis. Tears of joy, grief and relief are flowing. I am so grateful for your web of love and support.
My love, prayers, thoughts and hugs are with you.
If and when you would like me to come, just to visit, sit, read to you, meditate with you, run errands, whatever, Let me know,
Your friend Always,
Sharesa

Barbara Jaffe said...

Hi Anne,

I have a bad hair day, everyday. You, on the other hand look truly adorable today! It's wonderful to see that big smile on your face. You are clearly surrounded by oceans and oceans of love which will help buoy you throught this period - which will only be a crazy blip on life's map years from now. Just keep riding this along, even when it's a bumpy horse - UCSF is the best and I can feel all the support and love flowing from all your friends, though I don't know them. When you're up to getting visitors, I intend to tickle your feet and make you laugh. Doctor's orders! Until then, Lots of love,

Barbara