Oh ye faithful, that are still checking this, thank you. I went to UCSF yesterday - descent back into the disease model - though in fact it was another gorgeous spring day and in part a fun lark to the city. Lots of waiting and frustration - the clinic is clearly on overwhelm. My blood work was good - all counts in normal ranges except a little anemic still, and no cancer cells seen. I will have another bone marrow extraction next Thursday. Even if it shows complete remission, my doctor wants me to do the targeted chemo - myolarg - again the next week, and left the room before I could ask important questions like whether it will put me into needing daily blood work and every other day transfusions, which is of course a big deal. I am trying to change my follow-up appt. to the doctor I like better the next day, and will hear his answers to these questions. The computer search for a donor has found 11 possible matches, and insurance needed another screening test before they could proceed to contact them. It seems to me they move far too slowly in this process. I am trying to stay in the center of this process as a decision maker, though it is unlikely I will deviate from the doctor's recommendations.
Dennis and I are going to spend three days at Sea Ranch, up the coast, the next week, for our one year anniversary, so the chemo would wait until the next week. Life continues to need to be very go with the flow for me, and I am learning to do that at last.
I worked three hours at my bookkeeeping job yesterday, which I enjoyed, and will do again next week. My brain actually worked, which was gratifying.
I exercise a little more each day, building my stamina and my leg muscles up again slowly. I gained seven lbs in a week, putting me at 135, which is a very low end of normal for me. I eat voraciously and frequently, but I think I am slowing down a bit. I feel pretty good. It is all relative, and simply being alive, and not in the hospital, makes me quite happy.
Happy spring to you all - even my Northeastern cousins should at last be there. Such a lovely time of rebirth.
Love,
Anne
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3 comments:
Yay, Anne, you sound wonderful! So glad that you are enjoying life, your brain worked at the bookkeeping, you are getting stronger, and that you and Dennis are going away for your first anniversary!
I have wanted to call but feared disturbing you. I will call tomorrow or Friday, mid day, to see if you are up to talking.
All my love,
Ruthann
So happy to hear Anne, that you are going into YOUR OWN routine again! I have not made an attempt to call for the same reason as Ruth. So sorry I missed your call!! Please try again when you are up for it. If I don't speak with you have a wonderful trip to Sea Ranch and happy 1 year to you both.
Much love Always,
Sharesa
Hi Anne,
Happy spring. Looking at the weather map, you seem to be having weather more befitting the season. We in NC are having a return of winter. It snowed on Friday night enough to cover the roof and the grass and stick around till 10:30 am when the sun did it's magic. This morning it was a brisk and breezy 26 degrees when I went out walking! The Vottas and their various partners and children are gathering late this afternoon at my daughter Heather's house for dinner to celebrate this strange start to spring. We hoped that maybe Steve and Pat could join us but they are getting ready to head down to FL for Harry's b'day so we will see them when they get back. We send you our wishes for a joyful rebirth which is possible even when it snows in April. Much love to you from all of your NC cousins.
Linda et all
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