Well, my stem cell coordinator had told me at times it would be one step forward, two steps back. The day after my big jump in white blood cells, they hit a new low. Today they were up slightly from that, so I think there is engraftment. My mucositis hit, and at this point am on round the clock pain meds and can only swallow soft foods. Also I itch all over my body, and at last my hair is falling out. As I get my last dose of the immuno suppressant that is giving me the mucositis today, this will not turn around for a while, probably get worse, and the hardest thing for me is just being here longer.
Well, thank God for the painkillers. They want to give me one of those self dosing pumps. Lucy has made me a lovely custard that is the only food I can both swallow and enjoy.
So all this is just temporary stuff, and the big prayer remains no GVHD, no leukemia.
Love,
Anne
2 comments:
Dear Anne,
I offer tonglen for you that I may bear with my sufferings so that you may be released from yours. May you be healed and free from suffering. May all beings be healed and free from suffering.
Today we were looking at many photos my mom has saved over the years. There was a wonderful one of you, your Mary and Steven with our Mary and Eddie at some Bocchino occasion. You are all young adults, laughing, so beautiful and full of life. For whatever reason, this photo from a time past made feel joyful and full of hope.
With much love from your cousin, Linda
Pain pain go away make Annie feel better today! Its time for love its time to heal its time to eat some REAL meals. Cancer be gone, just go away so Annie can go out and play. And live and laugh and garden and hike and all the many things she likes. Keep fighting girl be strong be brave and you will have the life you crave. I love you Annie, I'm praying for you, please tell your family I love them too!
Kisses and Hugs and SO much love~Miya
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